Welcome to Holoprosencephaly.net This website was created by parents of children with Holoprosencephaly to help others find information, resources and support. We hope you find this information beneficial. Feel free to email us if you would like to contribute information. We appreciate your help and support. Please read our Mission Statement

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INFORMATION ABOUT HOLOPROSENCEPHALY

Welcome to Holoprosencephaly.net.

This website contains information about holoprosencephaly, as well as various medical conditions that may arise for children with HPE. We also provide information about government programs, therapies, organizations, equipment, and other areas that may help in the care of a child with HPE.

This website is dedicated to families of children with HPE and to our precious angels.

Definition Of HPE Causes of HPE New Diagnosis of HPE
The Carter Centers Potential Health Problems Sensory Issues
Diagnostic Tests Medical Publications Doctor Q&A
Meet the Kids Special Considerations as
your child with HPE grows
Types of Therapies
Equipment Modifications Assistive Technology
Early Intervention School Education Issues Financial Assistance
Support Resources

For more information and support, please visit: The Carter Centers and Yahoo Support Group for Families of Children with Holoprosencephaly