Holoprosencephaly
From Holoprosencephaly
Welcome to Holoprosencephaly.net.
This website contains information about Holoprosencephaly (HPE), as well as various medical conditions that may arise for children with HPE. We also provide information about government programs, therapies, organizations, equipment, and other areas that may help in the care of a child with Holoprosencephaly.
How to use this site
There are many ways to find the information you need.
- If you are just beginning to learn about Holoprosencephaly, we recommend that you begin by reading the links from the top.
- If you are trying to find more information related to medical problems that could be associated with Holoprosencephaly, please read through our section called Health Problems & Holoprosencephaly.
- If you have specific questions, you may want to use the search feature located in the top right. Simply type in a couple of words related to your questions and browse through different articles related to your questions.
- If you have a child with holoprosencephaly and would like to learn more about available therapies, state resources, equipment, etc, please read through our "Helping a Child with Holoprosencephaly" section
- Some pages will have a discussion page available. You will see a box on the top right telling you that page has a discussion attached to it. Discussions are comments written by parents related to those particular topics.
- You can go to our "Site Tools" section to see a listing of ALL pages available on the site, or you can look by discussions or categories. You can also see the printable versions of every page in case you want to download and print information.
Please do not hesitate to write to us at hpe.net@gmail.com if you need any help navigating the site or have any questions.
For more information and support, please visit: The Carter Centers and Yahoo Support Group for Families of Children with Holoprosencephaly
