Grayson Rogers
From Holoprosencephaly
Grayson Rogers: Born July 28, 2004
On July 28, 2004 our family was blessed with a little prince named Grayson. At 6 months old he was diagnosed with semi lobar HPE, our lives were changed forever. At first we were devastated. Then all of a sudden we came to terms with the diagnosis. We decided at that time to be thankful for the gift we were given in Grayson.
When I look at my son I see peace, beauty and love. Because of his syndrome, we have met so many wonderful people. We are blessed with amazing therapists that have become a part of our family. The team of doctors who care for him, for the most part, have been extremely caring and supportive. I have found an entire group of friends to talk with in the HPE family. Grayson's condition has been an eye opening experience for many of our family members including our surrounding community. There is an increased sensitivity, acceptance and understanding of people with special needs. It has given us the opportunity to raise the sweetest, most sensitive daughter. She looks at everyone as if they were all unique and special, and when she meets an "exceptional" child she is interested in seeing what they need or how she may help them.
Raising Grayson has been a challenge due to some of his medical problems but we have persevered. He is so peaceful and has a smile that lights up our world. I look at him and I see so much that he has given us, not what he is unable to do. Grayson is a very social little boy. He may not use words but if you look into his eyes and pay attention, words are not needed. For he makes all his needs known. I couldn't ask for anything more than we have been given. I am complete because of what I have learned and become in this journey. I am proud of my son, I love him for all that he has given to me and our family. I will be eternally grateful to God for the opportunity he has given us to raise this little miracle.
